Stage IV Stampede

Join us for the 2017 Stage IV Stampede and make your voice heard on Capitol Hill! The Stage IV Stampede is part of a grassroots effort to bring volunteers together from across the country to Washington, DC, to advocate for advancing medical research and improving access to quality healthcare for individuals impacted by MBC.

Join us on October 12 - 13, 2017 for METAvivor’s 2nd Annual Stage IV Stampede and make your voice heard on Capitol Hill! The event will include a half mile march from the Hyatt Regency to the U.S. Capitol, a Die-In (hosted by MET Up) to represent the 113 individuals that die each day from MBC, and an educational briefing on patient protections in healthcare. The event will culminate in a day of team-based meetings with the offices of your Senators and House Representatives where we will educate them about stage IV MBC and ask them to support the community by facilitating additional funding for research, keeping vital patient protections in healthcare and improving access to treatments.

On Thursday October 12, METAvivor will host registration, a reception and a brief training session for individuals interested in learning more about the issues facing the community and how to effectively engage congressional staff. You do not need to be an expert in civics or government to help create positive change, you just need to stand up and speak out!

REGISTER NOW!

ITINERARY

Thursday, October 12 (All events at Hyatt Washington D.C. Congressional Room A)

12:00 - 4:00 pm

Check In

4:00 - 5:00 pm

Advocacy and Congressional Visit Training

5:00 - 7:00 pm

Reception

Friday, October 13 - MBC Awareness Day

7:30 - 8:30 am

Check In and Hand Sign Pick Up, Hyatt Washington D.C.

8:30 am

1/2 mile March to Capitol Hill from the Hyatt Washington D.C.

9:00 am

DIE-IN (Hosted by METUP) - Capitol Hill

10:30 am

Continental Breakfast and Speaker - Kennedy Caucus Room (Room 325) Russell Building

11:15 am

Congressional Office Visits - Senate and House Buildings

3:30 - 4:00 pm

Debriefing - TBA

REGISTER NOW! For more information contact info@metavivor.org


We are focused on achieving seven specific goals:

  1. Expand the metastatic cancer research portfolio at the National Institutes of Health (NIH) in Fiscal Year (FY) 2017 & FY 2018 through growth in appropriations and demonstrated congressional interest in controlling and eliminating cancer that has already disseminated (metastasized).
  2. Ensure the continued growth of the Breast Cancer Research Program (BCRP) within the Congressionally Directed Medical Research Program (CDMRP) at the Department of Defense (DoD) in FY 2017 and FY 2018, and encourage prioritization of research opportunities for already disseminated, metastatic stage IV cancers since eliminating breast cancer through prevention has failed.
  3. Raise awareness of already disseminated, metastatic, stage IV cancer and the unique needs of affected individuals on Capitol Hill and among the general public and advocate the need for new codes for patients with a diagnosis of already disseminated metastatic cancer so that this population can be correctly counted.
  4. Insure patient protections remain part of healthcare reform efforts to include: a) limiting out-of-pocket expenses; b) ensuring no lifetime caps for treatments; and c) prohibit any pre-existing condition discrimination.
  5. Support efforts to improve access to quality, affordable healthcare, innovative therapies, and end the waiting period for disability and Medicare benefits for individuals facing terminal illness. 
  6. Cultivate a nationwide network of grassroots advocates who will effectively engage their elected officials to help advance the metastatic cancer agenda.
  7. Participate in community advocacy efforts focused on improving the drug development pipeline and facilitating treatment development.

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