METAvivor's campaigns increase public awareness of MBC and the discrepancies in breast cancer funding for research for the already metastasized patient. We disseminate the latest information about metastatic cancer and research, educate the community about the latest clinical trials, and represent the unique needs of the metastatic breast cancer community. We “hit the road” every other year and travel across the United States to meet with researchers and attend events with MBC patients.
All of this is not possible without sponsorship. If you know a company that may like to sponsor one of our campaigns, please let us know.
Translational metastasis researchers and clinicians of the Metastasis Research Society have partnered with patient advocates of METAvivor Research and Support Inc. and clinicians from the Sentinel Node Oncology Foundation to create a one-of-a-kind conference and webinar series meant to engage researchers, clinicians, and patients together in metastasis research to improve stage IV metastatic cancer patient outcomes and quality of life. Year 1 of the project focused on metastatic breast cancer specifically (2017-2018) and year 2 has been expanded to continue focus on metastatic breast cancer but also include all metastatic cancer types (2018-2019).
Our Legislative Advocacy campaign kicked off in October 2016, and will be a long-term effort to increase research funding for Stage IV metastatic cancer on a national level. We will also advocate for faster and easier access to health benefits and potentially life-saving, innovative treatments for MBC patients. Learn more about the plan, and about how you can participate.
Join us for the Stage IV Stampede on September 24 & 25, 2020* and make your voice heard on Capitol Hill! The Stage IV Stampede is part of a grassroots effort to bring volunteers together from across the country to Washington, DC, to advocate for advancing medical research and improving access to quality healthcare for individuals impacted by MBC. More information coming later.
*This date is tentative while we monitor the recommendations from the Centers for Disease Control, World Health Organization, and other medical professionals in response to COVID-19 (Novel Coronavirus).
The 2020 Sea to Sea for Metastatic Breast Cancer Advocacy Campaign will kick-off in the spring of 2020 and will include teams of two MBC patients and advocates that will travel across the U.S. to raise awareness of MBC and to educate patients how to effectively advocate for their own health.
Women (and men) do not die from breast cancer. They die when their breast cancer metastasizes and spreads to other parts of the body. There has been a huge push for breast cancer awareness in the past two decades, with a tremendous focus on prevention and early detection. We wish these efforts had been successful. But the simple truth is that after two decades and billions of dollars, breast cancer has not been prevented and early detection has proven no guarantee against metastasis and death. And while these billions have been focused elsewhere, almost 1,000,000 American women and men have died while waiting for research funds to finally be shifted to metastasis research. This tragic truth is lost in the sea of pink promotions. We cannot and will not allow this to go on.
METAvivor on the Move expanded the METAvivor effort through the establishment of regional teams throughout the US and to an extent Canada. With five teams established and five more in the works, we now have a nationwide base that will greatly expand our awareness and research fundraising efforts. By the end of 2013, regional Project Light Up teams had lit Los Angeles Airport, Niagara Falls and the Milwaukee Domes in MBC colors. This followed the 2012 lighting of Houston City Hall with the same colors. Regional teams are now heavily involved in our 2014-2015 Campaign: Sea to Sea for MBC.
Too often we have heard breast cancer organizations and even breast cancer surgeons and oncologists imply metastasis is rare or the fault of the patient. Breast cancer survivors are often in complete denial that MBC could ever happen to them. The “pink world” goes to great lengths to suppress the reality of our disease -- that it happens to one-third of the breast cancer community, largely for unknown reasons. The Elephant in the Pink Room campaign pushed recognition of our disease because with recognition, the support so necessary for the MBC patient and the research that could halt death for so many, will continue to elude us.
Thirty percent of women and men who are diagnosed with breast cancer will eventually develop stage 4 (metastatic) breast cancer and die. Yet of all the money dedicated to breast cancer research, only 2% is earmarked specifically for metastatic research. METAvivor's goal is to have cancer organizations devote thirty percent of their research budget to research that will help the 30 percent of women and men whose cancer metastasizes. The surest way to save the lives of patients already diagnosed with breast cancer is to find a way to make MBC survivable.